Some of the projects in which we are currently involved
Revision of the Code of Conduct for Health Research
The Dutch ELSIServicedesk provides researchers, professionals, ethicists, jurists, policy advisers, patients and patient representative bodies with advice on ELSI questions (Ethical, Legal Social Implications) surrounding (observational) health research. MLCF is one of the house advisers to the ELSI Service Desk.
Ethical aspects of public cloud infrastructure in medical-genetic research
Genomic research demands in particular large data and computing capacity. Commercial providers such as Google, Microsoft and Amazon supply so-called public cloud infrastructure. Together with the Health-RI ELSI Servicedesk, MLCF has been commissioned by the Hartwig Medical Foundation (HMF) to research the responsible use of this public cloud infrastructure for data-intensive scientific health research.
Other recent projects
- Study of the review procedures for medical research which does not fall under the Dutch Medical Research Involving Human Subjects Act (WMO).
- A DPIA for the KWF (Koningin Wilhelmina Fonds) IMAGINE project.
- A detailed data protection handbook for the department of Research and Business Intelligence of the local authority of Rotterdam.
- The collaboration agreement and the privacy document for the Hebon study.