Contributing to the conduct of responsible, high-quality medical research and health care.
The MLC Foundation (MLCF) aims to contribute to the conduct of responsible, high-quality medical research and health care. It does this through research, advice, drawing up relevant documents (regulations / agreements) and maintaining bonds with the external parties concerned.
We specialise in health care law, European law and the ethics and legislation concerning personal data and human tissue used in health care research and public health care.
We do research and advise health researchers, health care institutions and biotech start-ups on how to interpret legislation that deals with the use of tissue and data in health research and health care.
We draw up the necessary documents (collaboration agreements, governance etc.).
We contribute to pan-European research initiatives, often as WP lead for the ethical and
legal Work Package.
Governance of MLCF
The MLC Foundation is a non-profit initiative by MedLawconsult, set up by Evert-Ben van Veen LL.M. The Supervisory Board oversees the mission and activities and the financial accountability. The Board comprises Professor dr. Jan Willem Coebergh (emeritus), Professor dr. Ronald Brand (emeritus) and Gerda Groen LL.M.
Evert-Ben van Veen
Director and senior consultant
Jurist with more than 30 years’ experience in health and privacy law. Knows the practical and policy aspects of health care. Knows how to combine a practical and realistic approach with fundamental questions. Able to bring parties together and is emphatic when necessary. His contributions to Dutch
legislation in the 80s and 90s still stand in the statutes of today. Although primarily occupied with practical work, he still finds time to publish articles and opinions.
Evert-Ben helped ensure that the incorporation of the GDPR showed a more balanced approach to scientific research than the version suggested by the European Parliament.
Senior consultant and researcher
Martin has extensive experience as researcher and adviser on ethics, laws and regulations, governance and policy of health research of biobanking network BBMRI-NL and the NFU (Dutch Association of University Medical Centres). He helped set up the social advisory council for biobank research and the Health RI ELSI Servicedesk, and was involved in the European discussions on ethics, laws and regulations through the BBMRI-ERIC Common Service ELSI. Martin trained in scientific philosophy and sociology and Mastered in Utrecht on the ethics of biomedical research in a dissertation on the ethics and governance of large-scale biomedical research infrastructure.
Daniel joined MLCF at the end of 2019. Earlier that year he completed his Master’s cum laude in Law, in the specialism of Encyclopaedia and Philosophy of Law, at Leiden. Daniel is involved with two of our European projects, IDEA-FAST and Trials At Home, on the ethical and legal questions and is also preparing ethical advice on the use of the public cloud infrastructure in genomic research.
Graham is the office manager at MLCF and handles the administration side of the European projects. He has followed courses on budgeting and accounting for European projects. Graham’s native language is English and thus helps edit the English language documents and publications.
Nebojsa joined MLCF at the beginning of 2020. He studied social and cultural anthropology at the Amsterdam University. Nebojsa supports the team at MLCF as a project and office manager.